Am I the only one in such pain?
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WHO AM I?
I was 14 when my symptoms started, and it took another 9 years to get my Diagnosis from a Dermatologist. For work I take care of a terminally ill child in her home, and HS has affected my ability to do my job. I have had to take days off due to flare ups being painful and sometimes I’ve had trouble lifting the child due to flare ups in my armpits.
WHAT HAPPENS TO ME?
“I had large bumps on my groin area. At first, I thought they were pimples until they started getting really big, painful… I knew it wasn’t an STD because I was a virgin but I was too embarrassed to ask for help.”
“I do get periods when I feel like an alien or freak when I get a boil in the groin or bottom region. I feel like of all the things, why me?”
“I’m 40 and I feel like I’m untouchable. I don’t go out. I don’t date because I don’t feel comfortable. It’s disgusting.”
WHAT ARE WE DOING HERE?
“I don’t think any one of us here likes the fact that we live with HS – so why would anyone else?”
“It makes me feel good to be here and be around other people who know what I’m going through.”
“People actually listen to me when I describe what’s happening.”
Sharing experiences and stories helps. We’re Listening. Every Voice Matters.