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"I'm Amber"

Hello everyone, my name is Amber and I’m a black, 30 year old female from Indianapolis, IN

This is my story…


"I'm Suzanne"

Suzanne’s Story Hi everyone, my name is Suzanne and I’m a 39 year old female from Manitoba, Canada living with HS Disease. I was 26 years old when I experienced my first symptoms, a flare so bad on my inner thigh that I could barely walk. I had no idea what it was or what…


"I'm Traci"

I was 14 when my symptoms started, and it took another 9 years to get my Diagnosis from a Dermatologist. For work I take care of a terminally ill child in her home, and HS has affected my ability to do my job. I have had to take days off due to flare ups being painful and sometimes I’ve had trouble lifting the child due to flare ups in my armpits.


“I had large bumps on my groin area. At first, I thought they were pimples until they started getting really big, painful… I knew it wasn’t an STD because I was a virgin but I was too embarrassed to ask for help.”

“I do get periods when I feel like an alien or freak when I get a boil in the groin or bottom region. I feel like of all the things, why me?”

“I’m 40 and I feel like I’m untouchable. I don’t go out. I don’t date because I don’t feel comfortable. It’s disgusting.”


“I don’t think any one of us here likes the fact that we live with HS – so why would anyone else?”

“It makes me feel good to be here and be around other people who know what I’m going through.”

“People actually listen to me when I describe what’s happening.”

Sharing experiences and stories helps.  We’re Listening. Every Voice Matters.


It’s easy to be a part of HS Aware. Choose your level of comfort.

A little bit…

A little bit more…

And a little bit more…

Become a part of HS Aware.  You Belong Here.