Hi, my name is Traci and I’m a 23 year old woman with HS Disease.
This is my story….
I was 14 when my symptoms started, and it took another 9 years to get my Diagnosis from a Dermatologist. For work I take care of a terminally ill child in her home, and HS has affected my ability to do my job. I have had to take days off due to flare ups being painful and sometimes I’ve had trouble lifting the child due to flare ups in my armpits.
The pain from HS I’d describe as uncomfortable, sometimes unmanageable, annoying and a real buzzkill. Challenges I’ve experienced due to the condition include feelings of insecurity, hair loss, itching and fatigue. I manage my HS a few different ways, things like bandages and an anti-itch cream for flare up areas are important. For medications I use a combination of Humira and Spiralactone, which is considered a diuretic medication helping with blood pressure and hormones. I generally try to stay as cooled off as possible by using ice packs and fans. I also use a cold metal spoon on flare ups which works wonders for me!
There are 3 stages associated with HS Disease, and I’m in stage 2. If I could grant a person newly diagnosed with HS a wish for their future it would be that they would never feel alone with their HS. I felt that way until I discovered all the support groups on Facebook and how helpful they can be. I am able to ask questions to other HS Warriors, receive tips and talk with people who actually understand what I am going through.
Without HS I would have more confidence wearing certain clothing and bathing suits. I wouldn’t have to worry about changing bandages all the time or making sure my HS is not noticed. My life wouldn’t revolve around taking medications several times a day and doctor visits to hopefully keep my HS controlled.