Stories are where we make sense out of living with HS. Every one of us has a story and it’s unique. Sometimes just telling our story makes us feel good. And if our story helps someone then we feel even better.

Your story matters to all of us and we’d like to help you tell it well. You can use the form below as a guide – fill in whatever you feel comfortable. There are no wrong answers. Once you submit your story one of our #IamHSaware team members will get in touch with you to get it ready to post on our site.


How old were you when your symptoms began?

How long did it take you to get a proper diagnosis after your symptoms started?

What kind of doctor diagnosed you?

Are you currently employed? If so, what type of work do you do, and has HS affected your ability to perform your job?

How would you describe the pain from HS?

What other challenges have you encountered living with the disease?

How do you manage your HS?

There are 3 stages involved with HS; do you know which stage you are? If so which are you?

If you could grant a person newly diagnosed with HS a wish for their future, what would it be?

Do you think your life would be different if you did not have HS? If so, How?

Your Name (required)

Your Email (required)