Hello everyone, my name is Amber and I’m a black, 30 year old female from Indianapolis, IN
This is my story…
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Suzanne’s Story Hi everyone, my name is Suzanne and I’m a 39 year old female from Manitoba, Canada living with HS Disease. I was 26 years old when I experienced my first symptoms, a flare so bad on my inner thigh that I could barely walk. I had no idea what it was or what…
I was 14 when my symptoms started, and it took another 9 years to get my Diagnosis from a Dermatologist. For work I take care of a terminally ill child in her home, and HS has affected my ability to do my job. I have had to take days off due to flare ups being painful and sometimes I’ve had trouble lifting the child due to flare ups in my armpits.
My symptoms started when I was in in my early 20’s, and it took another 15 years before a family doctor diagnosed me with the condition. I am still able to work watching children, but have to do so from home. The HS in my groin area prevents me from doing anything else. The pain I’d describe as very bad, and I have to take Tylenol 1-3 times a day because of it. I’m not on any medication currently for my HS because nothing has helped, but I’m hoping to find out about Humira and if it’s available in Alberta, Canada.
I am a Nurse and have been for 12 years, but HS disease has affected the field that I am employed in. Psychiatric nursing was my passion and I excelled with that population, as well as medically fragile patients. I cannot physically endure caring for them full time though due to pain from flares or areas where I’ve had surgical procedures in the past. Now I stick with office nursing jobs.
I was 10 when my symptoms began, and it took another 18 years before I got my HS diagnosis from my Primary Care Physician. I am currently in the second stage of HS and I work as a Forman at a landscape company, and yes, HS has affected my job. I will usually call in when it gets bad enough although I do try to stick it out when I can.