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"I'm Searra"

There is no way to describe the pain from this disease. It’s unbearable at times, to the point where you don’t want to move once you find a position that the pain is not that bad in. If I did not have this condition I wouldn’t be in pain 24/7 and I’d be able to be more active.

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"I'm Jennifer"

I wake up every morning with my mind ready to go, my day planned out but my body says “NOPE, lets lay here a while and let life pass you by instead” Since I can’t move I guess will chase my dreams tomorrow… if tomorrow ever comes.

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"I'm Stephanie"

Hello, my name is Stephanie and I’m a 25 year old woman with HS disease. The pain from the disease is more than just physical pain; it’s an emotional pain that often leads to complete emotional devastation. Physical pain can be managed, wounds can be dressed and antibiotics can help provide relief. What a lot of people don’t tell you is that emotionally every day is a battle.

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"I'm Jessica"

Hello, my name is Jessica, and I’m a 30 year old woman living with HS disease. The pain from it is unbearable at times; it feels like my skin is ripping, burning, stabbing and throbbing. The pressure is awful, not to mention the constant itch you cannot scratch.

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"I'm Charlotte"

I can’t count how many dermatologists I’ve seen since I was 12 – I’m now 37. I’ve had many surgeries, struggled with weight and smoking too. And stopped wearing white a long time ago.

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"I'm Mercedes"

Hello, my name is Mercedes and I’m a twenty four year old woman who was diagnosed with HS three years ago. I think it would be nice to have 1 day where I don’t have to worry about a disease that completely controls me.

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"I'm Laura"

Hello, my name is Laura and I’m a 25 year old woman who has been living with HS for over a decade. HS is a messy and ugly condition, and it makes you feel messy and ugly as well. Differentiating between you and your condition is a battle in itself, one that I fight every morning in the mirror.

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"I'm Raquel"

Hello, I’m Raquel, a 44 year old female diagnosed 10 years ago. I believe that HS, like many illnesses, can be character building. It has made me stronger, more understanding and willing to help others.

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"I'm Joelle"

I wish there was a cure for HS because it changes your life for the worst. It is an awful smelling, emotionally draining and embarrassing disease that gives me feelings of worthlessness. I miss being able to do the things I used to like running, but any sports that involves moving freely I can’t do without pain. It’s a disease where people don’t believe you when you say your sick because one day you look fine, and the next you can barely move.

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